So I have this friend who moved in across the street from me last year and since then she has taught me volumes about how to live and love life in such an amazing way! Her and her husband both carry a SUPER SUPER rare genetic marker for this super rare disease and so their kids have a 25% chance of being born with it. So far they've had 8 babies. 3 so far have had the disease. And if you ask her she's super stoked to be beating the odds! The first one lived almost 9 months I think and the second for 6 weeks. They had their latest angel baby in December. Jonah Dare. He's been a fighter and is the cutest sweetest little angel baby ever. And boy is is he soooo very lucky to come to the most amazing family on the planet! Anyways, he caught pnemonia this week which for their other babies meant that they had days to live. So they've been loving in on him extra hard and cherishing each special second with him. I dropped by today and I just left glowing. That family is AMAZING! There was just such a peaceful serene feeling in their home in spite of the sad moments that are looming possibly minutes away. They are just together and wonderful and totally inspiring!
But cutest of all, they did some photo shoots today of sweet Jonah today. Jonah lived a full life in a day today in pictures! Check it out at their blog.....
http://megamindsatthewhitehouse.blogspot.com/
Anyways- I just am so touched by this family and their willingness to give these sweet little angels a body and a family and so so so much love that it just makes my heart want to burst with joy at the love this family has! For reals! I just wanted to share how amazing a family can be. They are spectacular!
Keep their family in your prayers! :)
5 comments:
Oh Nicole, thanks for sharing this! It's beautifully sad and their faith is amazing! They totally get why we're even here! Thanks for inspiring me today!
AMAZING! Thank you for sharing!
Wow. Not many things make me cry but that sure did. Thanks for sharing.
:)! Thanks for that!
I just found this today... Thanks Nicole, love you bunches!
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